$ Join the Discussion!         Questions About Jeune's Syndrome?
WINE TASTING APRIL 15! You are invited to attend an evening of WINE TASTING AND FUN to benefit the Jeune's Syndrome Family Foundation. VIEW and PRINT the INVITATION - Invite all your friends and neighbors! PREVIEW the FABULOUS AUCTION ITEMS DIRECTIONS to the EVENT Jeune's Syndrome Family Foundation In The News! We have a son with Jeune's syn. Will-he has been to Columbus and has had surgery to expand both ribs. Dr Phillips(surgeon) was wonderful! Sounds like there are so many varying extremes to this genetic mutation-what I gather about facial structures is basically the skeletal dysplasia... My daughter was born with a bellshaped chest, but she never had breathing problems... Keegan was moved to Riley's Children's Hospital in Indianapolis a day ago and since then they have run several tests, all of which (to my knowledge) have shown up either clear or have not been fully processed yet...						Sawyer Benson, then 4, was excited about going to Legoland...