Anthony Xavier Ruiz came into this world July 6, 2005, 3 months earlier than
his expected due date of September 18. We knew that he would have
respiratory problems and other heath conditions being premature, so we were
expecting some complications. What we did not know is that our son had Jeune’s
Syndrome.
At birth it was very noticeable that Anthony has a very small
thorax and short neck. All his limbs were normal length and his weight was
pretty good for being early (he was 3 pounds and 12 ounces at birth.) Anthony
was born at Cottage Hospital in Santa Barbara California. The doctors caring
for Anthony spent many sleepless nights trying to figure out what was wrong
with our boy. Finally one of the doctors came across Jeune's in a medical
book and she thought for sure that is what Anthony had...
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NEW! Join the Discussion!
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IF YOU HAVE A LOVED ONE WITH A NEW DIAGNOSIS, the mission of
Jeune’s Family Foundation is to offer A LITTLE HELP through
our monetary assistance program to the families of children who
need it most, and to offer A LOT OF SUPPORT including emotional assistance
and connections to the latest medical information for all.
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Sawyer Benson, 4, is excited about going to
Legoland... |
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