Our Mission Our mission is to assist families of children with Jeune’s Syndrome in locating information and access to the parent support network. We also intend to financially assist families that need to travel with their child out of town/state for rib expansion surgeries. We are a 501(c)3 organization as a project of the Colorado Nonprofit Development Center, and contributions to The Center for the benefit of the Jeune’s Syndrome Family Foundation are tax deductible to the extent permitted by law. The Jeune’s Syndrome Family Foundation was founded to assist families with financial, emotional and educational support after a diagnosis of Jeune’s. Click HERE to request a grant to help with travel expenses.